First things first. Amazing. Suddenly my injection site reactions are much improved. Can't believe it after three months of severe itching. I'm down to one antihistamine a day. To say I am relieved is an understatement. It's been very tough injecting when you know you are going to get such a huge reaction. Everyone said this would happen after a while! Woopee! Long may it last.
Mick and I travelled to Sheffield to see my Metabolic Specialist Jennie Walsh last week. It was just a general check up after three months of being on Strensiq (Asfotase Alfa). All is going well. I had bloods taken and filled in a pain questionnaire and that was it. Back again in three months for my bone scans etc., I am the only adult at Sheffield Northern Hospital so of course, my specialist and specialist nurse were very interested to hear about my experience so far. I know they will be pleased to hear my latest news. Next job - email to Sheffield.