Search
  • Melanie Williams

Feeling Grateful

Just keeping you posted on my road to accessing Strensiq as an adult with childhood onset HPP in the UK. I went to Sheffield Northern Hospital yesterday to have all my baseline tests before starting on Strensiq. This involved a 6 minute walking assessment to see the distance covered, weight and height, blood tests, signing consent forms and receiving information packs. I now wait to hear from the MAA (Managed Access Agreement) Health Care Team.


#HPP #hypophosphatasia #managedaccessagreement #strensiq #strensig #asfotasealfa

5 views

© melanie williams

This site was designed with the
.com
website builder. Create your website today.
Start Now