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  • Melanie Williams

19 days


All the injection sites are reacting within one day now. They are extremely itchy for three days and then they gradually diminish In redness. The largest reaction yet was 4” across. I am still tired but not as bad as last week. The Benedryl definitely works better than Fexofenadine. The best topical itch relief has been cold calamine lotion. I have been having quite a lot of bone pain this week.




Yesterday started an adventure with Strensiq as we are on holiday with the family at the moment. The cool bag has kept the medication between 2-8 for the first 18 hours. Tomorrow we go to Euro Disney with the Grandchildren!


#HPP #hypophosphatasia #HPPandMe #strensiq #asfotasealfa

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© melanie williams

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