Melanie WilliamsOct 9, 20192 minDay 3 on Asfotase Alfa (Strensiq)Can't believe it. I went to bed at 10.00pm and slept util 9.45am! Didn't get up once in the night - this is unheard of. I had to rush...
Melanie WilliamsOct 8, 20191 minDay 2 on Asfotase AlfaI slept extremely well last night as I was much relieved after the training yesterday and then doing the injection myself. Today we ran ...
Melanie WilliamsOct 7, 20192 minDay 1 on Asfotase AlfaWell last night I just couldn't face going to bed as I was pretty wound up about the events of today. Thoughts running through my mind a...
Melanie WilliamsOct 1, 20191 minStrensiq is in my Pantry!I was so emotional when the package arrived I could hardly sign for it. Mixed emotions of excitement and disbelief that I am so lucky to be
Melanie WilliamsAug 20, 20195 minGood News: Managed Access Agreement UK (NICE) Asfotase Alfa StrensiqAt age 60 and one day I have been approved for 'Strensig'. I have had symptoms since birth but only received my diagnosis at 51, after year
Melanie WilliamsJul 5, 20191 minFeeling GratefulJust keeping you posted on my road to accessing Strensiq as an adult with childhood onset HPP in the UK. I went to Sheffield Northern Hos...
Melanie WilliamsOct 30, 20174 minHypophosphatasia Awareness Day - HPP and MeI have lived my life with a very rare condition called Hypophosphatasia.
Melanie WilliamsOct 8, 20167 minLiving with HPP 2016As a baby I wasn’t able to sit up without propping until I was about a year old. The hospital put me into traction and used physiotherapy...