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Melanie Williams
- Feb 29, 2020
- 3 min
Rare Disease Day 2020
“ Every day with HPP makes 20 feet feel like 20 miles”.
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Melanie Williams
- Jan 31, 2020
- 1 min
I have done 100 jabs!
Yesterday marked one hundred injections of ‘Strensiq’ to help alleviate the symptoms caused by Hypophosphatasia.
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Melanie Williams
- Jan 25, 2020
- 1 min
I am Number 17
Did you know, 1 in 17 people in the UK will be affected by a rare disease at some point in their lives?
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Melanie Williams
- Jan 24, 2020
- 1 min
I Am Number 17
The piece of art below was created by me in #encaustic wax is inspired by my experiences of living with a rare disease called #Hypophosph...
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Melanie Williams
- Jan 23, 2020
- 1 min
I am number 17
Each of the 17 Changemakers have been working with artists from around the UK, who have created 17 pieces of art that represent the stories
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Melanie Williams
- Jan 20, 2020
- 1 min
Woopee!
First things first. Amazing. Suddenly my injection site reactions are much improved. Can't believe it after three months of severe itc...
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Melanie Williams
- Jan 15, 2020
- 1 min
Road Trip
Today I travel to Sheffield to visit my Metabolic Specialist, Jennie Walsh. It’s a long journey from Wales but I am so grateful to be looke
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Melanie Williams
- Dec 23, 2019
- 2 min
Zapped with ESWT
My feet have given me problems since infancy but by now the tendons in my feet are degenerating
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Melanie Williams
- Nov 19, 2019
- 1 min
Distraction Techniques
Real gnawing aching that has needed some serious pain relief and heat and ice.
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Melanie Williams
- Nov 4, 2019
- 1 min
Day 25
Wow we had a great time on holiday but I am now totally whacked! It was a great joy to see both our grown up children and grandchildren ...
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Melanie Williams
- Oct 28, 2019
- 1 min
19 days
All the injection sites are reacting within one day now.
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